Not so long ago (but a decade in Internet-time), you couldn’t be online without seeing something about the ALS ice bucket challenge, or a post about what someone thought about it. From someone who has a family member with ALS, it was truly wonderful to see all the cat videos replaced with awareness of a horrible, fatal disease that many people don’t know much about. The ice bucket challenge brought in a lot of money for research and care, and it brought hope to so many victims and families who are praying every single day for a cure.
Here’s Joe’s video (on behalf of our family):
For those of you who don’t know about what the disease is, here’s a quick summary: Amyotrophic lateral sclerosis (ALS), often referred to as Lou Gehrig’s Disease, is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
It really sucks.
On Saturday, we’ll be in Des Moines to join in the Walk to Defeat ALS, for my uncle, Justin Rasch. The photo at the top of the page is our JustinTime group picture from last year’s walk–how awesome is it that so many people came for Justin?! There’s a news article about him here (from the Des Moines Register two days ago), his website here, and you can also read a bit more about him from my blog post last year. Our family is incredibly blessed that his case has been progressing relatively slowly, and we are all so grateful for that. However, it is progressing, which raises the urgency for Justin and every other person suffering from ALS every day.
If you didn’t get a chance to donate or participate in the ice bucket challenge and would still like to, feel free to support our team (we’re trying to lock in first place for donations, and last time I checked, we’re in the lead!) at my fundraising page here. Even if you can’t donate, please please join us in praying for Justin, his wife Cherissa, their kids, grandkids, my grandparents, the rest of our family, and everyone else affected by ALS. I really can’t emphasize enough how important your prayers are.
Thank you all so much for reading and for your support. We appreciate it more than we can say!