I normally try to keep things a bit light-hearted around here if I can. I’m sure you’re thinking about all the complaining I do on a regular basis, but I hope you realize that it’s all tongue-in-cheek. If all I really have to gripe about is the fact that Grace is belligerent and Sophie is teething, then I’d say that things at Casa Weber are really pretty dang good.
Early this year, my uncle was diagnosed with ALS, more commonly known as Lou Gehrig’s disease. If you don’t know much about it, be thankful. As far as diseases go, it’s a pretty horrible one. There isn’t yet a cure, but my family is working hard to change that. We’re doing what we can to help raise awareness and support for people who suffer from ALS (PALS), especially in this upcoming week. Joe and I sent out the following letter two days ago, but since we’re short on addresses, I thought it couldn’t hurt to share here:
Dear friends and family,
On Saturday, October 12, we’re joining hundreds of walkers in Des Moines for The ALS Association’s Walk to Defeat ALS, and we’re writing to ask for your support.
We’re walking in honor of Justin Rasch, a very close family member who was diagnosed with ALS earlier this year. Justin is one of twelve children, with three sons of his own and one grandchild—plus two more on the way. You can read more about Justin’s story here.
ALS, also known as Lou Gehrig’s Disease, is a deadly illness with no known cause or cure. It affects the motor neurons in a person’s brain and spinal cord. When the motor neurons die, the muscles waste away. Gradually, a person is robbed of the ability to walk, speak, eat, and eventually breathe. Upon diagnosis, doctors give ALS patients only 2 to 5 years to live.
We have set our fundraising goal at a modest $425.00, and we hope you’ll help us reach it. We’re already 10% of the way there, but we only have 10 days left to fundraise!
In its advanced stages, ALS costs families an average of $200,000 per year. By making a one-time, tax-deductible donation, you will make a real difference in the fight against ALS. Please click the button below to visit my online fundraising website and make a donation.
Any amount you feel comfortable giving is deeply appreciated. Every dime makes a difference! With your support, we can make a positive impact today in the lives of those living with Lou Gehrig’s Disease.
Joe and Francine Weber
What the letter doesn’t say is how much Justin means to our family. He is smart, dependable, and always making someone laugh with his dry humor. He is constantly serving others, but does it quietly so it doesn’t draw attention to himself. I’ve mentioned my big extended family before – (my mom is one of those twelve kids mentioned above) and Justin is one who really works to keep everyone together, even in planning our annual New Year’s fiesta. We’re blessed that the disease is progressing relatively slowly in Justin’s case, but are already seeing the effects.
I know that there are many people and organizations out there asking for money, and I know there are many worthy causes. More causes than cash to go around, if it’s anything like my household’s budget. I understand if you don’t feel you can give, but we do ask you to consider helping if you can. Even more importantly, please, please keep our family in your prayers. I specifically ask for prayers for Justin’s wife, sons, their families, and for my grandparents, who should never have to watch someone so close suffer in this way. It won’t be easy for any of us to attend the walk, where it will be an in-your-face reminder of how devastating this disease will be, and already is for so many.
Thank you so, so much for getting through this long post, and for any prayers/donations you can send our way. We appreciate it more than you know.